CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES »

Wednesday, December 31, 2008

Happy New Year - Hello 2009

As I write this - I took the time to look back on last year at this time.  I was sick - it was the type of sick that I never want to repeat.  Although I feel a bit sick, cold, cough now - it is nothing like it was last year.  I am most definitely having side effects from the tamoxifin and/or herceptin, but I guess it is something that I have to live with.  My knees get so swollen that it is hard to walk, that is about 3-4 per week.  I think it is from the tamoxifin.  As it comes to the time which father time will change from one year to the next - I reflect back and look forward.  I wish everyone a safe, secure new year.  


For me - I have not really been good about making resolutions and I am not good with sticking to the Jan 1st type of thing.  When I stopped smoking - it was Feb 1st - and that will be 10 years this year!

I also think that for me, this will be a wonderful year.  I am looking forward to being done with the every three week infusions.  Just think, I have been doing that for about 1 1/2 years and no wonder I can't find veins for blood work and infusions.  But, when I am done, I am done - if I had a port that would be one more thing that I would have to do.  

Hair - glorious hair.  It is coming back.  Still have yet to use a brush - I don't need one as of yet just my fingers.  But, if I have not mentioned it - there is something about short hair that I personally don't like.  Not sure if it goes back to when I was a kid.  I think I am going to grow out the bangs a bit longer and then decide what to do with it.  I just feel old and look at my skin - I look old too.  Guess that is really what I want to work on for the new year.  I am going to see if I can get that to go away (looking old and frumpy).  I also want to change some other things as well - and that will come with time.  It really is an inside out thing.

So, with that said - I am happy that I am not sick this year - there is not any visible cancer in me and that I can think with a clear mind. 

Peace be with you.

Tuesday, December 23, 2008

I have been busy - and now I can breathe

It has been a long time. A long time. Several people have asked me how I feel. I feel 75%. I feel older, as if my body has aged from the inside out. My knee's are worse, my veins, don't get me started - it is hard to fine a "good one" and I am thankful that today's blood draw was without event! So, enough whining -

In a strange way, I have always loved the snow - lots of snow where you can't move snow. The Chicago snow that is up to your thigh. The deep powder on the side of Vail mountain. Snow glorious snow. Yet, I never will live in a place with too much - as much as I love to play in it - I so don't love to drive in it. Hopefully with that being said - we will have a white Christmas this year. As I was thinking of each of you on Winter Solstice - it is my mom that shared with me the following:

Dear Heron Dancers,
The Shortest Day of the Year Just Passed
The winter woods are white now

Quiet and peaceful.
I left my cabin today
For a walk through the woodsAnd snow.
Big white flakes, filling deer
And coyote tracks.
A pileated woodpecker

Hammers an old pine tree
Sustenance.
My dog looks at me with eyes that wonder if he should investigate or ignore.
I stop to listen and watch.
He does too.
Then we walk on together,
Through the white, white
Falling snow.
The longest night of the year

Behind us now.
A new year just ahead.
A fresh new year, just ahead.
What will it bring?

Change, change.
Change will come with this New Year.
Keep growing, keep moving.
Keep learning, keep stretching.
Keep walking these woods.
This next year—hard work, challenge
And then a return
To peace, deep peace
In these woods.
In celebration of the Great Dance of Life,
Roderick W. MacIver


I have shared the secret of Heron Dance with several of you - but if you have a few extra dollars and want to be a part of such beautiful words - go to www.herondance.org and subscribe.

I am off to my 2nd to last infusion, it is a true push at this point. It is part of my life. As I was talking to someone today - they said - don't worry about bringing a dish - you have a Dr's appointment in the morning - and my response was - well, it is part of me. It really is just something that I work with. Such as today and many many other blood draws. Lilli has to go with me. Either she sits with me or sits in the chair across from me. Today - she got chocolate from the nurse - before lunch - oh my. But that is again just part of my world and those that need to do this. Just as my boob is my "stomach muscle" normal for right now is getting blood drawn. It is really a casual affair and I just don't make a big deal about it. Why, I think it is like a swear word for Lilli. If I react - it is that much bigger. Hell, there are lots of people that have to do this for years. And years. And only to lose their battle. So, I'll take what life is giving me right now. May I remind myself, I am on vacation. Wonderful vacation for two weeks!!!! I rented 4 movies today - Mamma Mia - as I was watching it I was reminded of my visit to the stage production about 6 years ago when my friend met me in St. Louis. It was great then and I still love musicals today. They put a charge in your body. Well, for some of us, the others - guess that is why not everyone goes to the theatre. OK. For someone that did not have anything to say, I am rambling.

Peace be with you on this day.

Friday, December 5, 2008

2 more

It has been forever. I am under a tad bit of stress at the end of the semester. Here is what I want to remember - 2 more infusions!!!!

I'll be done before I go back in the spring. But, that means, one on Dec 24th - oh well.

And,
"everything you say matters, somethings count". I love that quote.

By the way - each of my herceptins tends to get a bit worse the day after. Is it just me? Don't know. But, this time, I was so tired the day after and my whole body felt icky. Goodness. Oh well, it is now another day later and I feel OK.

Peace be with you.

Friday, November 21, 2008

BRCA1 and 2

Just a quick note - BRCA1 and BRCA2 test came back with "no mutation dedected". That is good news! So then - where the HELL did this cancer come from?

I saw this obit and thought it was great, do you think she wrote it?
WEIDMAN -- Elinor Cessek Johnson Weidman, born December 18, 1914 in Cicero, IL, to Czech parents Frank and Mary (Danek) Cessek, died of just plain old age on Friday, November 14, 2008. A 50 year Albuquerque resident, she lived a long, rich, rewarding, extraordinary life for nearly 94 years--always confident and independent, and usually a little eccentric. A brilliant student who skipped two terms in high school, she traveled in Europe with two girlfriends between the Depression and WWII, leaving a lasting impression on her life. She loved reading, dancing, traveling and, most of all, duplicate bridge, becoming a Silver Life Master after much success in local, sectional, and regional tournaments. She was pre-deceased by virtually everyone from her era, including many friends, and her sisters Mildred, Camille, and Winnie. She was married to Dr. Donald Bowden Johnson of Evansville, IN from 1939 to 1955 when he died, shortly after the family moved to Albuquerque. They had two sons, Doug Johnson and Rick Johnson--whom she raised as a strong, single parent. In 1974, at age 60, she married childhood friend and widower Bob Weidman with whom she shared 31 wonderful years, until his death in 2005, at age 91. In her words, both of her husbands were "marvelous men and dancers." Elinor spent her last two years at 819 Parkland Circle SE, in the superb care of Sandy Green, Michael Bishop, and the warm-hearted staff at their small, loving elder care home. She is survived by her sons, Doug Johnson and wife, Ruth and family, Rick Johnson and wife, Debbie and family; stepson, Doug Weidman and wife, Judy and family; stepdaughter, Arlene Hamilton and husband, Bill and family; grandchildren, Leslie Johnson, Lauren Johnson Hegna and husband, Corey and family; her best friend of 40 years, Joann Coleman of El Paso, with whom she shared joy, secrets, and work. She was famously a bad cook, an infallible grammarian, an eternal optimist and was rarely wrong about anything. She loved chocolate, poetry, romantic art, bright colors and her Schiaparelli-designed sunglasses with little black and white awnings, which she wore outdoors and indoors for several decades. She hated cheese sandwiches, dangling prepositions, vulgar language, rude people, and extremists of every stripe. A Memorial Service in her honor will be held Friday, November 21, 2008, 3:00 p.m., at French Mortuary, University Blvd Chapel. In lieu of flowers, contributions may be made to your personal travel fund or to your 401K. Please visit our online guestbook for Elinor at RememberTheirStory.com. French 1111 University Blvd. NE (505) 843-6333

Tuesday, November 18, 2008

Grandpa's death

I feel sad today that Grandpa passed. Although there is a sense of peace within me as I know he lived such a long life. Glad that he went in a good way. It has been a long road for my mom, and for that, I am also feeling a sense of peace for her.

Death is death - I would imagine that if you have strong beliefs that you "go" somewhere - then it may make it better. But, it is sad when good people die. My grandparents were great people and I feel as if being part of that family really makes me appreciate friends and family now. There was one year in which I lived in Tucson, and I really had a great relationship with my grandparents. We went to shows, had birthday parties, had fun. I love being with them and always felt good around them. In the last couple years when I would visit my grandfather, we talked about things that were hush hush in my Swedish household. Money. Where on earth did they get that money to build a beautiful house in Timberlake. We talked about management - his duties. That was interesting, I could never imagine.

So, on this day, when mom called, it was the day for him to pass. He was loved and he loved others. So, how do you live your life? That is the question that swirls around in my head. I want to live my life with zest. That is how I think my grandparents lived their life for the most part. It sincerely is about living and participating in life - not waiting to die.

Today, I went and had lunch at the museum. My place. I was one with my grandparents and took a few deep breaths and enjoyed some memories. When I ordered my lunch - they gave me #22 to place on my table. It was then that I knew. My #22 is the sign. Then, when they delivered a tuna sandwich instead of my turkey - I really knew......

Peace be with you grandpa.

Friday, November 14, 2008

Thoughts on this Friday - and after herceptin


The count down is on. I think I have only 3 herceptins left – I am going to have to get back and see where I am at. There are a few things that I have thought of over the last week. The first is this idea of getting into the groove of being normal. It happens. Yes, I knew it would happen, but it does happen where you just start grooving. Don’t notice so much around you. Yet, the other day, I was walking to class and saw this purple feather in a tree. It was just sitting there. It was not from a bird, but rather from such thing as a boa. It was odd sitting in that tree, alone. Do others notice the purple feather I wonder.

Fear. I speak of fear a lot. Yesterday I saw it in the face of a gal that came into the chemo room to “look around”. At first I was not sure if it was she or her husband that was coming in for treatment. But, it was her. And she was fearful. You could see that numbness, that blank stare of “this is not me” “this is not happening”. I know that stare. She will get through it, or so I say, push through it and I hope that she will be OK.

When your heart just sinks. You know that feeling. Your heart just sinks into your stomach. It happened to me today. I was taking Lilli to school and saw a big puff of smoke. Black smoke coming out of a chimney. I looked at the sign and all I needed to do is to read “Animal services” and you know the rest of the story. It is life. Just before that moment, literally, it was 5 minutes before that, I was wondering if there is an organization that takes the animals of cancer patients that have died. There has to be some type of something like that out there. I am not sure.

Have to say, the head is fuzzy today. Although I don’t want to think there are any “side effects” from the herceptin – I am fuzzy for some reason. My brain is off and my stomach is off. I spent an hour trying to sweat it out this morning at the gym. I have decided to not worry about the weight and just continue towards being healthy.

So, part of this blog is a reach out to my family. It started as just that. Then, as we all have given the url to some people that may find it of interest or comfort - we have shared our journey in this crazy situation. I thought since I have been raw and detailed for most of the time I would share my views on therapy. People ask me about going to group therapy. I never did that. Amazing, as social as I like to be, I decided to not go. I will say that I did spend a few hours with a specialist in cancer therapy discussing how I felt and how to move my life forward. My suggestion, just like everything else – do what works for you. There is no shame in talking with professionals that help you see things from a different light. Also true, I hold my education close to my vest as my shield. This is the place in which I have fought to stay in classes and have done OK. It is also a place which I have pulled from energy around me and become stronger when I thought I could not go on. I write this now, not because I think I am clear on life, death, cancer and being me, but my experience has heightened my awareness to what is around me. A purple feather if you will. As I write this understand, I write for me. This is not about sharing some secrets with the reader, as my immediate family knows the twists of cancer and what I have been through. Or thus, we have been through.

With that. I sign off for the day or the week.
Peace be with you.

Wednesday, November 5, 2008

Just some thoughts

I am happy that the elections are over, that Halloween is over and we are on to the end of the year. The bottom line is that I have tried to focus on becoming stronger from the "core" and yet I have been feeling not so great. Whether it is true or not, I think that the tamoxifin is making me gain weight. Lord knows, I have fought that battle all of my adult life - but now I am making a real effort to get moving and eat less. Yep - three weeks into a "formal" weight watchers - sign em up and count everything.....I have not lost any weight. Rather - in a week I gain 4 pounds from the week before. Moreso - I am trying to drink more water and I have been exercising 4 days a week. Whatever. It is not what I thought would happen. I have another 6 months on the Tamoxifin and then I'll be done. I looked up the side effects and water retention is one thing as well as weight gain. Just say that and there I go - the ol placebo effect~

And, I want to write this down - if I go crazy - like really crazy it is because of the constant ear ringing. For the love of god - stop the madness!!!! It is all of the time. The worst is when I have some little creature yelling in that high pitch voice - you know what I am talking about - that drives me over the top.

As I am complaining, a thought just popped into my head. Today is not about me. It is about someone that I knew a while ago. He was a very close friend of my close friend. Although I did not know him at the friend level, here is what I observed from the outside. A guy, dedicated to his work - his life was about his work - died last weekend. I was talking to my friend about him, and she told me that he was in hospice care. She was flying to see him this week. But what I heard myself saying to her, did he live while he was alive.

Did he live while he was alive?

To each of us that means something different. It does not mean that we have to do crazy stuff to prove that you are alive. What comes to my mind is skydiving, or such. That would just scare the crap out of me and there - poof - I am alive. No, what I am talking about is more than that. So many times I get caught up things that really don't matter. I do call it the negitive energy. But what I am doing to make sure that my life is to be lived the way I want in harmony with others. There is cleary a balance that we all strive for after our basic needs are met. But why do some people just live without living?

Does it really take an event to shake things up? Maybe.

I am rambling, on to something else. Bone pain. I have had a cold over the last couple of days and I am reminded of what my bone pain used to feel like. I am so happy that I don't have that anymore. As I walked to my car yesterday, I was also reminded of how I don't really care for the dark and the cold. I can't wait for those days when I can walk to my car at 5p.m. and have it be light. I love the light.
Peace be with you.

Thursday, October 30, 2008

It has been a while

I have been thinking that it maybe time for me to retire this blog. It once served as a place that I would post my updates and thoughts so that I could capture them as I went along on this journey. Just as I was thinking that - I had the BRAC 1 and 2 test done. So, as I wait for the results - I'll keep the blog going. I am still doing the Tamoxifin and herceptin. So, until those are done, I think that I'll post more thoughts as I go along. My "trigger" event - that is a transformational learning theory buzzword - has uncovered lots of things that I have been allowed the opportunity to look deeper into. If for one second someone thinks that a person can go through this without seeking deeper meaning of life - then they are mistaken. Or worse, if a person does not take the opportunity to really pull back after the "fight" and see themselves and their life as something different - I am sad for them.

I think of things differently, and if one is not to judge this - then I'll say it here. I don't look at life in terms of reaching 65 to retire. I look at it as, living for the now and being a bit cautious for the future. Will I reach 65? That is the question. My worldview has changed, and it is mine alone. I don't share that with anyone. It will continue to change as I become more of me. I so wanted to make a change to free myself of some of the things that I felt were holding me back, when in reality it is not about the "things" it is about the me.

I am posting an article that came across my email. Call it what you want, but most people just live their life from event to event, thing to thing, rather than enjoying what it is within them. I have always known that I would do things differently in my life. I am not meant for the main stream "normal" rather, something different. Not so "abnormal" if you will, I have always known that there is more, to see to feel and to be. More.

With that -
Peace be with you today.
Here is the article:

The Beginning of an Extraordinary Life
By Robert White













One of the most powerful pieces of writing that I've ever seen is from Marianne Williamson's book A Return to Love. It was quoted by Nobel Prize–winner Nelson Mandela in his inaugural address, and perhaps you've heard it before. I used a sentence from it when talking earlier about risking. I keep the full quote in my desk, and I refer to it often. Listen closely and consider your own life as you listen to Marianne's words.

"Our deepest fear is not that we are inadequate; our deepest fear is that we are powerful beyond measure. It is our light, not our darkness, that most frightens us. We ask ourselves, who am I to be brilliant, gorgeous, talented, and fabulous? Actually, who are you not to be? You are a child of God. Your playing small doesn't serve the world. There is nothing enlightened about shrinking so that other people won't feel insecure around you. We were born to make manifest the glory of God that is within is. It's not just in some of us; it's in everyone. And as we let our own light shine, we unconsciously give other people permission to do the same. As we are liberated from our own fear, our presence automatically liberates others." What powerful words.

The best place to begin living an extraordinary life is to honestly look at where you are now. This is not about judging yourself or making yourself wrong; it's just a simple truth-telling from you, to you, about your current reality. That honest look at yourself will be part of the foundation for making some quantum leaps in effectiveness and in personal satisfaction.

We'll begin this message with a series of questions, such as, How are you doing in the major areas of your life? How are you doing with your relationships? How about your career? Your health and fitness? Your connection to spirit? Take an honest, direct, and nonjudgmental look at where you are. Beating yourself up is counterproductive. Glossing over real problems and having your ego speak is also counterproductive. The following questions are for you to answer and only for you. It's through the resulting awareness that you can create an authentic opening for the rest of your ability to living an extraordinary life. You can just mentally make notes of your answers, or for maximum value, you can write them down.

So how are you doing with your relationships and communications? Your relationships with yourself, with your family, with your colleagues at work, and with your community? Are those key relationships rich and fulfilling? Or are they superficial or distant or in conflict? Over the past five years I've asked many audiences how many are estranged from a family member or know of someone in their immediate family who is estranged from another family member? The yes response rate is more than 70 percent. For many of us, key relationships are in turmoil. How about you? How are you doing with your relationships and your communications?

How are you doing with your career? Are you doing work that's rewarding to you? Are your talents, experiences, and knowledge being used effectively? Are you acknowledged for your contributions? Do you spring out of bed each workday morning, eager to show up at 100 percent?

How are you doing financially? Are you making the progress with your income and savings that you feel are responsible and satisfying? Does money run you? Or is it simply an enabler in your life?

How's your health and fitness? Are you as capable of your best work or giving your full attention to your children at 5 p.m. as you are at 10 a.m.? Do you like how you look in the mirror? If there was an emergency that required you to be fast and flexible, could you perform physically?

More importantly, what is the gap between where you are now and where you want to be in these key areas? If where you really want to be is represented by a 10, how do you rate yourself? And let's do this: From 1 to 10, how do you rate yourself on your relationships and communications? With yourself? With your family? At work, and in your community? How do you rate yourself on your career? Again, using that 1-to-10 scale, how do you rate yourself on your health and fitness? Begin to clarify what you want as a result from the money and time that you've already invested and will invest as you go through this program. Perhaps more importantly, what's your level of commitment to beginning the process of closing that gap?

My approach to closing the gap uses the following framework: awareness, responsibility, and communication. Awareness is the necessary beginning of any process of personal or organizational growth and for any positive change. People tend to succeed to the extent that they are aware of their essential purpose for existing and that their choices are aligned with that purpose. If they aren't able to see things clearly, they will inevitably make mistakes based on false assumptions or get engaged in activities that leave them drained and unfulfilled. It takes a high level of awareness to avoid meaningless activity and focus on the people, projects, and personal growth that nourish and fulfill our lives.

This need for greatly enhanced awareness applies to you, the individual, and to every major corporation, our society, and humanity at large. Gaining deeper awareness is often compared to waking up, because when I'm unaware, I am really asleep to what is going on around and even within me. Unfortunately, the kind of waking up that really opens new life possibilities is often forced upon us by dramatic, even traumatic, moments of crisis. We experience a painful ending to a relationship, a heart attack, business or financial failure, or a death in our family.

I'm a personal example of waking up as a result of a dramatic event, and I have often said that my first real awareness experience was not the seminar I attended in 1969, the one that launched me into this lifetime learning quest; it was divorce. A real wake-up call about how I was actually living my life as opposed to my feel-good story about it.

These kinds of events can precipitate a waking-up process that, when honestly confronted, can be the beginning of fresh insights and valuable life lessons. Those painful events, while a painful way to learn, are often understood as blessings with the passage of some time and after gaining some perspective.

To create an extraordinary life, I need the information that only a deep sense of self-awareness and awareness of others can provide. I need to be willing to honestly face my life and what is occurring within it. With awareness, I get to see my underlying attitudes, habits, and beliefs, and the behaviors that flow out of them. I get to see whether these inner qualities support the achievement of my outer goals, and whether some of them, perhaps even familiar beliefs from childhood, no longer support me in accomplishing my life's purpose and vision. This clearer picture of who I am, what I believe and care about, how others perceive me, gives me valuable insight into where I really am in life, to where I could be, and to who and where I want to be.

Still, let's face it; it's easier to remain in the dark, unclear and uncertain about my direction and goals. Plus, it appears to be safer, or at least more comfortable, to sleepwalk my way through life, which is why many people do it. Remaining unaware is safer, probably more frustrating, and ultimately deeply discouraging. The natural way out of sleepwalking is simply waking up. The natural way out of unawareness is awareness. And with greater awareness, new opportunities for understanding and action emerge. Life becomes filled with possibility. It all begins with simply noticing what is really so in our life.

Once I've gained new insights through greater awareness, taking personal responsibility enables me to produce dramatically improved and tangible results in my life. This, in turn, creates a virtuous circle, leading to more self-confidence, which leads to even more extraordinary personal results. The moment that I stop blaming the circumstances of my life, attributing any lack of accomplishment to fate or bad luck or age or education, I begin seeing myself in the driver's seat of my own life. And as I become aware of my choices and their impact on the world around me, I begin to realize that I am fundamentally responsible for the circumstances of my life. By accepting responsibility for the way things are, I become more able to intentionally respond and create the results I want.

Our character springs from the willingness to accept responsibility for our own life, and it's the source from which true self-respect is built. In my experience, that's absolutely true. Responsibility is at once powerful and empowering. It begins the instant I'm willing to give up my victim point of view. Simply put, this requires I stop blaming others—my wife or former wife, my parents, my boss, or even my dog—for the way my life is.

More importantly, and the hardest of all, perhaps, for many of us, responsibility means I stop blaming myself. Though it seems paradoxical at first, there is tremendous freedom in owning all of my results, even the ones I don't like and especially the ones I resist owning. Real responsibility does not mean I feel guilty or ashamed or obligated or burdened. It means I'm no longer waiting for someone or something outside of me to fix my life. I'm the one who is making it happen.

Even well-educated, successful people subtly or not so subtly avoid responsibility. We pay for doing that, and how to transform our experience of living is by simply taking 100 percent personal responsibility for our lives.

Once I'm operating from personal responsibility, communication becomes the critical consciousness and skill for living an extraordinary life. All of life's important results are generated in communication. If I communicate authentically, appropriately, and with passion, my communications will be effective in forging powerful relationships with others and in amplifying the effectiveness of my choices in life and in work. Communication is what holds every relationship together, in personal, corporate, and community life, and it keeps things moving; it's the engine of accomplishment.

There are clear differences between people who accomplish extraordinary results and those who don't. Each one faces the real circumstances served up by life. Each has dreams. The difference is that those people who accomplish much lift their circumstances up to their dreams through awareness, responsibility, and communications. Others lower their dreams to fit their circumstances. It follows that in everything I do, if I really want to succeed, I must articulate my needs and my vision in order to create the possibility for having my reality match my dreams. This demands that I master the art of communication.

John Donne said, "No man is an island, entire of himself; every man is a piece of the continent." It's a powerful statement. It's worthy of some reflection and quite true. You can accomplish very little alone. Almost everything you want to be, do, or have is dependent on your ability to communicate effectively with others. You may need to gain support for your ideas, generate a true partnership and service of a worthy goal, or overcome opposition. That's assuming you're living a commitment to an extraordinary life.

If you sincerely want to escape from the ordinary, realize your dreams, and live an extraordinary life, you need to master the personal tools of awareness, responsibility, and communication. That's not just my opinion; it's more like gravity— it's the way things are.

Around the beginning of the 20th century, psychologist William James said, "The greatest discovery of my generation is that a human being can alter his life by altering his attitude of mind." Earl Nightingale quoted James in his Lead the Field program more than 30 years ago, and 100 years later at the dawn of a new millennium, James' statement is just as true, and, ultimately, attitude is much of what this program is about. It's a key foundation piece in the adventure of living an extraordinary life.

Creating an attitude that works is much more than just thinking positively. It requires attention to a deeper part of ourselves than can be gained by just listening to a motivational speaker. It requires the sometimes challenging work of gaining a new level of self-discovery, self-understanding, self-acceptance, and audacious self-declaration. It's our experience that truly extraordinary results are created by people who know their purpose for living, have a compelling vision that draws them to accomplishment, and are clear about their personal values, those bedrock qualities of being and doing that must always be practiced. And, finally, extraordinary results are created by people who take action, action in alignment with their purpose, vision, and values. It's a powerful mental model that, when followed, produces brilliant results for people and organizations. In today's uncertain times, it's a model we all need.

Friday, October 24, 2008

What a week

I have offically done just about nothing (in my terms) for the last 3 hours. What a crazy week it has been. I am about to go into another one as well. But, tonight and the focus for tonight is figuring out what Halloween costume we are wearing to Zoo Boo. I thought we knew what the little gal wanted until URGH!!??!!**!! we saw sleeping beauty on video. So, who knows. I'll get to the bottom of it when I pick her up from school today.

Here is a quote:
Wanting to be someone you're not is a waste of the person you are.
Kurt Cobain (1967 - 1994)

So, I wonder then, if he wasted his life away? Interesting now to reflect on that one.

I had my infusion - maybe 5 left I think. Thank heavens. It was a crazy day. In a matter of fact, so crazy that I was supposed to see the Dr. but he was running behind....SURPRISE surprise surprise so I rescheduled for next week.

I need to head on out - so a bit more later.
Peace be with you.

Monday, October 20, 2008

Thoughts on Friends

I thought that these words were nice. I have not seen Wicked, so I am not sure the context of this. I'll download it on my iphone soon to hear. Then, Lilli can sing it in the car, after "Oliver" (Olifur is how she says it), Mamma Mia and Consider Yourself. It is right inline with her wanting to be a good witch for Halloween. I told her the bad witch was already taken.....watch out or I'll get you my pretty!

For many of us - people come and go for many reasons. There are those in which are considered friends and just sometimes go - and don't come back. Real friends, authentic friends are there forever - not just in the good times. And, real friends, just understand that sometimes we need to be on their side when it seems as if the whole world is against them. Trust me, there is a story here, but I don't think that writing it on my blog is the right thing to do. I want to be a real friend to this person. She had a hell of a week last week, and really took a thump to the noggin' in the local paper. So, being a friend is just that - listening and agreeing and not asking, and of course - the key - offering chocolate in many different forms that we can eat to make us feel better! That is a friend.

Another friend, who I have know since high school wrote me a note right at the right time. Amazing. She has such insight, and lets it fly. That is why I say that friends are there forever to me is Soul to Soul.

OK - enough - I have to write a paper about motivation (learning theory).
Wicked - For good Lyrics
Album: Wicked (2003 Original Broadway Cast)



(Elphaba) I'm limited
Just look at me - I'm limited
And just look at you
You can do all I couldn't do, Glinda
So now it's up to you
For both of us - now it's up to you...

(Glinda) I've heard it said
That people come into our lives for a reason
Bringing something we must learn
And we are led
To those who help us most to grow
If we let them
And we help them in return
Well, I don't know if I believe that's true
But I know I'm who I am today
Because I knew you

Like a comet pulled from orbit
As it passes a sun
Like a stream that meets a boulder
Halfway through the wood
Who can say if I've been changed for the better?
But because I knew you
I have been changed for good

(Elphaba) It well may be
That we will never meet again
In this lifetime
So let me say before we part
So much of me
Is made of what I learned from you
You'll be with me
Like a handprint on my heart
And now whatever way our stories end
I know you have re-written mine
By being my friend...

Like a ship blown from its mooring
By a wind off the sea
Like a seed dropped by a skybird
In a distant wood
Who can say if I've been changed for the better?
But because I knew you

(Glinda) Because I knew you

(Both) I have been changed for good

(Elphaba) And just to clear the air
I ask forgiveness
For the thing I've done you blame me for

(Glinda) But then, I guess we know
There's blame to share

(Both) And none of it seems to matter anymore

(Glinda) Like a comet pulled from orbit
As it passes a sun
Like a stream that meets a boulder
Halfway through the wood

(Elphaba) Like a ship blown from its mooring
By a wind off the sea
Like a seed dropped by a bird in the wood

(Both) Who can say if I've been
Changed for the better?
I do believe I have been
Changed for the better

(Glinda) And because I knew you...

(Elphaba) Because I knew you...

(Both) Because I knew you...
I have been changed for good.

Peace be with you and your friends today.

Wednesday, October 15, 2008

Kindness






Here is a website that has the right idea. So....get out there and start spreading kindness.......

Peace be with you on a day like today.

Sunday, October 12, 2008

Just a thought on this Sunday night

Hi there -
Here is a thought that I came across.

“This life is yours. Take the power to choose what you want to do and do it well. Take the power to love what you want in life and love it honestly. Take the power to walk in the forest and be a part of nature. Take the power to control your own life. No one else can do it for you. Take the power to make your life happy.”

Peace be with you.

Saturday, October 11, 2008

I am now a warrior


Here are some fun pictures from fiesta.



I got a package in the mail today. Wait a minute - I should first start by saying that my dad is here and we are having a nice balloon fiesta visit. Got up at the crack of oh dark thirty to see the balloons. It was fun. Wonderment is another way to describe it.


OK - back to my package - my sister sent me some wonderful pictures of her race for the cure. So here is what finally makes sense to a gal that doesn't care for the pink ribbons - a warrior. I am most likely the last to know this but I'll share with you all. http://www.fordcares.com/ go there and see for yourself.


Here is what was sent to me:

Snowflakes are one of nature's most fragile things, but just look what they can do when they stick together.~~Vesta M. Kelly


Wednesday, October 8, 2008

For this I believe

I believe that cancer took my breast, yet made me whole again.
I believe in the strength of my friends, family and of that of strangers.
I believe that the small gifts in life are really what to hold true. The sloppy kisses of a child, the purring of a cat or the kind gesture of a stranger.
I believe that friendship is my glue.
I believe that gratitude is something that lives in tandem with my God. It is through gratitude in which one can see clearly. Not through anger. I believe my cancer has shown me this.
I am a better giver than receiver
But it is in the receiving that one becomes humble.
I believe that the greatest gift that I have given others is the power of awareness. Aware that we are all human, to love and embrace our similarities, and differences. Aware that we can start with one human, to create a wave of difference in our home, community and the world.
I believe that my life is to be lived, not just as a cog in a larger wheel.
I believe that cancer is me. I am cancer. I am those lessons learned. It is all intertwined.
I believe I create my destiny.
Cancer does not discriminate is includes all ages, religions and gender. I believe that we should not discriminate with regards to treatment.
And, I believe mostly, that I am grateful for my cancer and to continue to breathe and live. I believe I am the lucky one.

Tuesday, October 7, 2008

Good morning Sunshine!


I have a few thoughts that I would like to jot down this morning. Life was great over the weekend - although crazy with the 3 kids - it was so super to see my friend. Jeez - it'll be 20 years this May that I met her. And, I thought I'd include a picture - think about this - what did you see on your way to work today? I saw a fun balloon land in the soccer fields! I stepped out to take a picture. There were hundreds of other balloons floating around. Here are random thoughts. This is my 3rd balloon fiesta. And just as I hope I never forget how beautiful the mountains are, I hope I never get sick of seeing balloons. There are people that actually say, gone to one balloon fiesta and that was enough. I feel bad for people like that. To me, that is close minded and silly. Mary who has seen her share of them, still says that she is in awe when she sits on the fields. I agree. It is magical and spiritual.

Another thought, being famous. Yes, my name has been on the backs of people and thus I am someone. Is that included in my 15 minutes of fame? Yikes - I hope not. Seriously, I thank everyone for thinking of me, and others that have gone through this craziness!!! And, eat pink M&M's this month!!!!!! Give me an excuse and I'll indulge!

I hope that everyone has just as beautiful of a drive to work, school or just the mall as I did this morning. Even better yet - to have a 3 1/2 year old in the back see that loves to see it just as much. Truly seeing through the eyes of children is the best.

Peace be with you.

Sunday, October 5, 2008

Balloon time of the year

Here is the update on my hair. You look at me and never would know that I was bald just a few months ago! Favorite people in the world! And they happen to be my nurses. Wonderful people!
It is a Fiesta here. Beautiful first day morning - thrilling comes to my mind!

If you are happy and you know it clap your hands!


Saturday, September 27, 2008

One year has come and gone

There a couple of notes that I have not blogged about.  Toe nails.  Officially I can see when my chemo stopped and above - it is gross.  As my toenails grow - the new stuff is coming in and thank heavens is good.  So my year anniversary of the mastectomy has come and gone.  It is hard to believe that on one hand it has been a year, on the other - it still seems as if I am in it fully.  As I have said earlier, for me, just for me, the road has so many twists and turns along the way.  There are just signs that you either see as "stop" take a look or "yield" I wonder.


I am looking forward to balloon fiesta next week and reconnecting with some old friends.  Hard to believe that next May will be 20 years that I moved to Vail and met so many neat people that are still in my life today.

With this short note, I sign off.
Peace be with you.

Ali

Friday, September 19, 2008

Not too much going on

Here are just some random thoughts for the day. Tattoo's. Now, I am not against tattoos at all. Of course, my one rose was cut off with the ol' boob, and I am fine with that. But, here is what I really wonder. I am in line to get my coffee this morning in the library Starbucks, and alas, there is this girl, I say girl, I bet she was about 18, with very visible tattoo's on her neck and her wrist. They were pretty, but I do wonder the why behind it and then does it just become part of the body at some point and it is seamless, she is one with the tattoo and the tattoo is one with her? Don't know. Meaning, does she see them anymore? So I wonder.

I just thought of something, next Friday is my one year anniversary for my mastectomy. And, the good news is that it is 1 day before my niece's birthday so we will be celebrating together! I think that my sister and I are going to a movie - so watch out - bring on the popcorn - time to celebrate!!!

I am so fortunate that the weather is wonderful here. I look up into those blue skies and really can reflect on being in a good space. I remember, just like a cat, I would sit in the sun when I was feeling bad and cold. And then, with the taxol it would make me hot.

So I ramble. Another week is over, and another busy week is upon us. I am happy to say that once a year I wash my windows in the house, inside and out and all of the screens getting ready for Balloon Fiesta. As long as I am here, and alive, I think I will look forward to Balloon fiesta. It is just a joyous time of the year.


For anyone that is into EI (Emotional Intelligence) check out human media.org and it is #131.

Peace be with you.

Saturday, September 13, 2008

Tires blood and to do's



Here is the reality of my new normal. I made a "to do list" including getting my tires rotated and getting my blood drawn. Then, Lilli was taking the "to do" list and making her own - she put it on top of a picture she colored. The other day I looked into the back seat of the car and thought - isn't that funny, this is my life. And moreso - that list on top of a 3 1/2 year old picture that was colored.

So I ask the question - what is on your to do list? My hopes it is not to get your blood drawn for a CBC!

Peace be with you on this Saturday.

Thursday, September 11, 2008

9/11

I have to write, that is just the feeling sometimes that I have to do before I go on with my day. Put thoughts down on paper. Trust me, I have several journals and thought places. For today it is here.

So I pause on Sept. 11th.....no, that is what everyone is saying on the news. No, please. Don't pause. Stop. Yes, stop what you are doing and think. Think about how your life has changed or what your life is about at this point. We all know where we were and what we were doing on 9/11/01. Now it is a time for us to really take this time to reflect. How has your life transformed. What am I thankful for. It is just amazing to me what has happened over the last 7 years in the life of the country and my personal life. And so it goes......

Now onto being scared. Last night I had an ice cream party at Casa Esperansa, it was fun. People of all ages, colors and faiths. After the "rush of people" I went and sat with this gal (55) that was all alone. We started talking. She has been thru radiation, she has had surgery and now onto the 3 day chemo. She has cut her hair in thoughts that it will soon fall out. She is scared. It is that FEAR in which is the worst pain. And so we talked. We laughed an mostly my lesson was to listen. It was my place just to be - be still. To understand. I have not been in the place that she has been, nor she with me, but for this "club" which I hate, we are all a part of the same. I cleaned up, and went home. Like so many other people that have touched my soul, this Shelia will stay with me and my thoughts will be with her on Monday. 3 Days of Chemo. I told her she will be just fine and she'll have a bad day or two, but she will get through it. And, she too will soon have the short hair do that we chemo people only know about. The secret lies within.

Peace be with you and all of those that may hurt on this day of 9/11.

Sunday, September 7, 2008

Thoughts on a Sunday

I got through my infusion on Friday and it was a sad day - at least for a while - they are closing the cancer office on Fridays. Now I need to go on a different day. I guess that the work load for these people was too little. I say that with tongue and cheek. What, you want all of the seats filled all of the time. There are times, like Friday, in which people need to drop in and get something. Such as getting hydrated when you are sick. Anyhow - I was going to take a picture, but I did not.

I felt a bit odd on Friday night into Saturday morning. Odd, just because it was that - not sick - just really tired and icky. So, who knows, but at least I slept in on Saturday. I am so glad that I don't feel fuzzy anymore. That was a bad thing that happened after my treatment. I hated that. Just knowing that I would feel gross, with fuzzy thought. So I ramble.

Today was a good day. Went to church and the theme was simplicity. Mostly how to simplify your thoughts and your mind. I liked it. It spoke to me and what I want to do. For some reason I have tried to crowd myself with many thoughts and things when in reality - it is the simple things that I think that we all seek.

With getting back into the routine of school, I find that all of my time is reading. That is what it is about. It is the reading for those little nuggets that make you think on a different level and being open to learning new things. Or, at least how to break the old and reconstruct it in a new theory or model. Models and theories. Yes - that is my thought process - how does this flow - where would I put this in my model. Yipes. Oh, I did not mention, I got a crappy little office at the library. OK, it is really just a small room that one person can barely fit into but it is mine for the year and it is in the Library. My home, the library. I am truly living my dream and it is really about the Journey this time. This time I am taking my time to enjoy and explore not rush through and not be present. I want to think, feel and pursue others that are on the same quest. Thus, at 43 I am happy to be in this place. Could had it happened 20 years ago, I don't really think so. My life and my choices, good or bad, is what I am today and where I go is about the choices I make now.

But, back to the thought - I use each moment of the day filling my head with new readings. And, I have a LOT of them this semester.

Oh, we think I have 7 herceptins left - so - 1 every 3 weeks that is about 5 months or so. I have to say that my nurses, are just wonderful. Inspiring and understanding. Just amazing. Should mention that for some reason I was paired with a great oncologist as well. How did that happen? Not sure but I am happy that it did. I now see him once every 6 weeks. I was filling out a form about my health for school and they asked when the last physical I had, I said, don't ask!!! And, would you like my most recent blood work as well???

Tattoo. I just no longer see my thing 1 as a boob with a nipple. It is just a stomach muscle with fat and skin. Here is how I feel, it is still hard for me to comprehend that I am part of a cancer club. Yes, even after the last biopsy and scare. That may sound strange. It is the same thing that I think of when I think of how people perceive me. From the outside I look one way when in reality I am something else on the inside. Like, I have a secret. That was what I was thinking today as I had a few minutes to myself at the store. The gal wanted to see my picture ID when I gave her my credit card. I gave her my ID and she looked at me. Not saying a word, she completed the transaction. Yes, I say, I have a secret. Maintaining a normal outside, yet, there is something different on the inside.

OK. Enough of my thoughts on this Sunday evening.
Peace be with you.

Wednesday, September 3, 2008

Thoughts about Death

Today I am at school and started the process of submitting an article for publication. It is a start with a long road ahead. As I was doing some research I came across the death of a CEO from IHG. I gasped. Out loud. How did I not know this? Have I been caught up in my own little world not to realize that over a month ago this great guy died. I knew him just from afar and met him just to say hello on a couple of occasions. You know me, always soaking in what a CEO does from afar. Analyzing in my own way. So, I am saddened. Earlier today while reading an article a thought popped into my head, and I wrote down "death is in the house" on a little piece of paper to ponder later. I wrote that because Chris came home and said that a guy that he knew through work had died of lung cancer over the weekend. He was sick for a while - not too long. So, with that, is just another reminder. I wonder, did that guy live the life that he wanted? He got to the end and was he happy? Those are the things that I ponder. My mom wrote me a quote and it kinda goes like this - start your day with purpose. I try to stop and reflect on my thanks each day. What I am thankful for today. It is with purpose, not just a list of to-do's in which I want to live. I was talking with a 10 year cancer survivor and we discussed the going through it again. No, it is not taken the boob that is the hard part. The chemo is surely harder than the surgery, but the hardest is going through the emotions. It is true. I keep referring back to that time and this gal I was talking with actually described it as a divide - before and after. So true and your worldview changes. It is not like that transformation of the body - it is of the mind. How you view things is just different. And, I have not changed, but there is something that has changed. So be it.

With that said, I just had to write my thoughts down on a day like today. I am saddened that for me, at one time death felt so scary, now I understand - it is really in the living. Ah-ha. Living and enjoying the small things. So, off I go to share in community with my class.

Here is a quote that I captured from Steve's website:
He was a Prince, and all who knew him--Loved him.

A few things that go through my head almost on a daily basis - integrity - it is what you do when no one else is looking. And, at the end of the day (for real not that silly sentence) when you lay your head on the pillow, have you done something good?

And with that - Peace be with you today.

Monday, September 1, 2008

Random Thoughts for the day

I need to go back and timeline the hair growth. I think it is stalling a bit - that is OK. I like it this length. Have you ever wanted to be re-invented. I am thinking like Madonna? Maybe that is what I'll do. I'll re-invent my outside to reflect the inside.

As I was cleaning out my office, getting ready for the school year (hell, cleaning is always an adventure in my life) I came across a DVD from last year. It was of my balloon people. Remember when I asked for a sign. I can't figure out how to get it downloaded but I'll try.

So, While at the Dr.s office - did I write about that? No - went to Dr. Smiths office last week for my "stitch" out. And, with a 6 month mammogram in hand I was set free. The med tech gals asked if they could see my TRAM. You only have ask once....take a look I say - they said "nice job" then I said - well take a look at my stomach. Nice scar they say - I say well...look at the dog ears....oh he (plastic surgeon) can fix that they say....I say....yes, and I'll get the nipple tattoo too....cool they say......and off I go. Just a pleasant conversation between me, a gal with cancer, and two gals young into the field of medicine.

As the summer is leaving us, and fall is arriving, as my mom says, things just look different, I am saddened. I love summer. We shall see how the fall will pan out. I had a weird sensation the other day, have you ever had a cold bottle of water, then left it in the car, it warmed the water, yet on the inside of the water it is still cool? I felt that the other day. It was warm outside, yet the breeze was cool.

This week I go for an infusion on Friday. Can't recall how many I have left. Maybe 7 I think.



I just came across these - and I laughed. So I thought I'd share.

Thursday, August 28, 2008

Getting into routine


I did not put these in my biopsy pictures. Here is the Dixie Cup on the boob pic - I had to wear an old IHG shirt - since I don't have an button down that were big enough for large dixie cup! Seriously - you have to ask yourself - is there enough room in there for needles? And then, why do I feel the need to take a self portrait as I am sitting and waiting to get the OK get up from the chair with the 2 needles in your boob. Sometimes....a lot of time....I am just plumb crazy!

I don't think that I wrote this earlier - so I will now. I went to my Dr. on Tuesday and got my stitches out. She used the glue on the other part - but had to use a stitch here and there. I ended up having to wait for a while. Here is what she said - the results surprised the radiologist - she expected it to be cancer. Yipes. That is scary. So, I am thanking my lucky stars. Oh - side note - Dr. says that when the swelling goes down, my boobs should be even.

OK, I am just going to say this - what the hell are old men doing helping their wives shop? This drives me nutty!!! Today I went for the annual - buy shoes this year for next year 75% off sale and there were two old guys just getting the way. I wanted to pull them aside and explain how it works - move out of the way!!!! And, then I started thinking, for heavens sake - what is the woman doing allowing their husbands actively helping them? Oh humor shows up in a few different ways.

I ran into one of my school friends today, and then we ran into another one of our friends. Girl Power!!!! The one gal has a daughter Lilli's age, so, we are going to get them together so that when Lilli goes to the Pre-K she'll know someone.

I switched a class today - so now I am doing a bit of catch up. It is going to be a busy semester, but I think OK. Doable.

I need to get up early, meeting with two gals for coffee at 8a.m. - so I need to get out of here by 7a.m., that is early. We are going to talk about Second Life and the applications in training. Just fun stuff. I know that I love this stuff, because when I start talking about it in a group I get very animated. So, passion could be that right word.

Peace be with you.

Monday, August 25, 2008

Life is anew

And so, with a flick of the wrist, she switched from one year to the next by changing her car parking permit. Alas, a new year, a new start and new thoughts are on the horizon. I am starting to look at life in the way my advisor suggests some people are – passion hoppers. That is why this life will suit me. I like to go from one thing, to the next with zest and passion. Why not.

There has been some interesting research done on positive surroundings for cancer patients. I have known this and wish I can find the article – maybe later. But, as indicated, being positive and surrounding yourself with positive thoughts through the process helps. It does go back to, put one foot infront of the next and figure things out. If you don’t like it, then live with it or change it. It is about choice. Because there are times in which you don’t have a choice. You don’t have the choice of cancer. It chooses you. So, I keep going back to, then you are you, a little more, the lessons learned, or given. It is a part of me. A good example I have is this – each time I stretch or bend, I am fully aware that my left side is tighter, it wants to lean over and sag. That darn stomach muscle is pulling me down, but I just won’t let it pull me down. It ain’t happening.

So, it is on this fresh Monday. Step one foot infront of the next, listen to a little tune on my i-phone and head to my first class. Life is grand.
Peace be with you.

Tuesday, August 19, 2008

Oh Happy Day

The power of a phone call. I got done with work and decided to stop at Albertsons on the way home. Here is what happened about an hour earlier. I called the Dr's office and was told that results will not be in until later in the week. I was pissed. Why - well - the Dr. said that the results would be in today. So, walking on pins and needles - then someone at the office says that - grrr. But, then the phone call comes in while I am in the Cereal Aisle. Freeze. Frozen. Do I answer? Yes - it is someone at the Dr.'s office. the Path report comes back with some medical term that means no cancer. That is all I have to hear. I need to go to her office next week for a follow up - but oh happy day.

The power of our phone. Incredible.

I have been thinking about that gal that died last week. Her son is 4 years old. I thought he was 9 - don't know why. So, I thought that I would do something this weekend that she may have liked to do with her son. Maybe the zoo or such. Lilli and I will do something to celebrate a person that I was very fortunate to know.

I happened on another person that died over the weekend. If you so desire - http://www.npr.org/templates/story/story.php?storyId=92038718&ps=bb4
The funny thing is that this blog followed the life of a very well know writer, but he really pin pointed many cancer issues. The one is on a roller coaster. Take a listen, powerful stuff!
Going back to what I really think, I have been learning lessons, I need to understand those lessons. I am still getting strong. From the core, strength starts from the core.

It has been a day. I am headed to bed - need to put that sports bra on for the night. 24 hours of wearing - better than the ace bandage for sure.

Overall, I have one thought. A lumpectomy, although I understand is really scary, was nothing like my mastectomy and TRAM. I don't want to say that a lumpectomy is nothing, it is, but holy cow - what a difference. I did make up my mind that if there was cancer in my path report - I was going to have the right boob chopped off. Don't care - take it and I'll put a sharpie smiley face in the nipple area. But, the only thing that I'll need to worry about in the next 6 months is to get my dog ears (from the TRAM) tucked in. I just can't stand them.

OK, enough for now.
Peace be with you and thank you all for your crossed fingers, good thoughts and prayers. Finally, good news.

Sunday, August 17, 2008

Biopsy - Needle Loc


I went in to get my needle loc at 9a.m. on Friday. I don't ever want to do that again. It was not fun. But, in the true spirit of showing all here - I'll put in some of the pictures. Although the procedure was not the most painful - it ranked up there. Your boob is put in compression, then the Dr. comes in an numbs it, they figure out where to put the needles in, then he put the two in, double checked it and then I had another mammogram. All was OK and then the Dixie cup went on. We traveled across town to the surgery center. Got all set up there, I was the last one of the day. I guess it took about an hour to do the biopsy/lumpectomy. We were heading home by 3p.m. I was able to rest all night and then some more today. Thank heavens! I took a shower and took the ace bandages off. It looks OK. Nothing too bad. Here are the pictures....don't look if you don't want to....




















Thursday, August 14, 2008

Thoughts of the day

Some things just have to be. I thought I'd jinx my chances of the fellowship if I wrote this - but forget it - I got word that I did not get one of the fellowships I interviewed for. Rejection never feels good. It stings. You get that word and it does hurt. But there are winners and losers - also too remember (I say to myself) that I put myself out there a bit. It would be EASY to not do some of the things that I do - but with the doing is the chance of rejecting. If I don't try - then I can't keep growing. So you ask, what was I going to write - here is the truth - I could not make it up if I tried. I went for my 1st interview at 1p.m. and I knew where the Asst. Dean's office was - that was not the problem. Then as I approached the door was open, and I got closer, what was the room number? You guessed it....222. Had the interview, and what they are doing is GREAT - but they got someone most likely from that college that knew the prof's and the programs. I am good with that - because I really think what they are doing is in the right direction. So, I grabbed an Americano on Ice, talked to Emily and then got in my car - I decided that since I was meeting my Mac guy (from work he sold me his computer which is a Mac i-something - desktop) at 5:30 across town, I was going to park in the parking structure since I ran out of change for the meter where I was parked. The rates are the same 1.75 per hour - just the structure is out of the sun and I can pay with my debit card.

So, I moved my car and got the parking stub - what time was it - 2:22p.m. - right there for everyone to witness - I should had taken a picture. So as I wait for my fellowship word from my 2nd interview - just keep hoping that the other candidate does not have more experience than I do. I am feeling a bit beaten up.

My spa mate died yesterday. That also stung. I learned that this afternoon. The last time I saw her was at the breast cancer walk in June. Our kids where in the bouncy thing together. She was a few years older, but had that magnetic personality. She was the one that told me about the retreat. I am sad. This is a horrible way to die. In a matter of fact that was just the discussion we had as our kids jumped. Chemo sucks and it sucks to feel crappy - especially if you are going to die. Her cancer spread and got the best of her. Why? That is the question. I have her image planted firmly in my memory and will think of her often. One never knows the impact that just a chance meeting or two will have on someone.

Death and strength - how they go together. Reflecting on someones death makes one strong.

As I sat today for my herceptin treatment - there was a guy and his wife that came in just about the same time. He had bad news, something about needing to be better hydrated, so he needs to come back in the morning for his chemo. Good news, he doesn't feel like crap tonight - bad news, everything is out of his control. Anyhow I was sharing the story about Dave - my cousin's husband and how he went in for intensive chemo last week. After one treatment and the drugs you take along with them, he looked at me and said - OK - I am not going to complain about this today. Ta-Da - life is now in check. Anyhow - I hope that Dave is feeling better this week.

I am pooped. I am so thankful that today I was able to come home and just sleep. Chris picked up Lilli and I slept. What a relief.

The week is almost over, tomorrow is the big biopsy day. I know that everything will be OK. I just know it will be.

Peace be with you.
Ali

Monday, August 11, 2008


Just good thoughts

Yesterday I went to church. Lilli of course went to the kids area and we brought some bubbles with us to share. There is this gal that is such a free spirit - in a way reminds me of Amy. Anyhow - she said that at her work the night before a little girl also had bubbles and just couldn't help but to blow bubbles then twirl in them. Isn't that just a delight? The other side of the story is while she was twirling - and holding the bubbles solution - you guessed it - flung out most of the solution. Oh well - a few minutes of bliss is well worth it!

So, I got this call today. She said that there were problems with my blood. Lordy - what next. I called back and as it turns out when I had it drawn last week something happened and they did not get my plasma. Geez. I had just gotten done with my EKG. So, I decided to just go after dinner and have it drawn. Ouch. Gotta keep some good veins for my herceptin infusions!

And, it was back to work today. OK. I like being there - I admit it. I have lots of work to do before I leave. And, everyone cross your fingers for good vibes my way for my interview for my fellowship with the library. We shall see how that shakes out. I have a 50/50 chance.

Tomorrow is muga scan. For fun - I'll take some pictures. I have not been documenting this round of crap....oops.....round of worry.....as I did last year.

I am ready to put my celebration nose ring back in. Can't wait to have it shine a bit. I'll go on Saturday to my "piercer". You know, every gal needs a piercer!

I am trying to figure out the mobile blogger. I love my i-Phone but can't figure things out.

Time to head to bed.

Peace be with you.

Wednesday, August 6, 2008

Updates

I have not written in a while. Not because things are going OK, it is just the opposite. So, I'd rather refrain for a while. Here are some other things that are going on. Getting ready, blood tests, changes in Herceptin infusion, EKG next week, and what else....Oh - Lilli is off school this week. We have had fun. Went on a train today, although it was a bit of stress this morning, overall once we were there it was good. Here is really what I learned. Feeling a bit down, I did not get the $5000.00 scholarship that I had hoped for, and that would help for the year, I did not get picked for a paper presentation, and some other things, I just feel crappy. But, here is what happened. We went from the train to the bookstore today. They had this thing at the school bookstore that if you bought 9 books during the summer, then you get one free. So, throughout the summer I bought the 9 books. Today was the big, go to the bookstore and pick out the "free" book (trust me - Lilli is getting 4 books for Christmas!!! Just need to tuck them into a safe place that I'll remember). Anyhow, we were starving, so we went to the Union and got something to eat. Enjoyed eating outside, it was warm, but I would rather be outside than inside. Then, we went to the bookstore. Spent 1/2 hour or so there. She picked out the free book plus another..... Here is the realization. I love being on campus. I feel like a wilted flower and then when I get to school someone puts water on me and I perk up. A calmness comes over me. It is right. So, everyone cross your fingers that I can land this fellowship. It is really neat opportunity and I just feel as if it is right.

And, my friend Emily told me that I needed to get some sports bra's for after the biopsy. I went to get those today. She also warned me - NO HUGGING! OK OK - I'll fight the urge to hug someone on the street! Seriously, I plan on being OK on Friday and on Saturday go get my nose ring put back in. They said maybe they can do tape on my quartz ring for the procedure.

Enough - I am tired.
Peace be with you.

Tuesday, July 29, 2008

So, now that I have said nothing is wrong. All is fine. Throw me another coach - lets try something else!!! I am so over it. The gal at work said - did you have your cry yet....WHAT.....I can't do that are you kidding. I have to take this moment and stuff it into a neat little package and kick it across the frickin' country! I am done. NO MORE.

Here is how it goes. I went to the surgeon and thought I would be OK - until she said that she talked to the radiologist for an hour on Friday. And what, you did not invite me to the tea party?????? I knew something was up. Although my MRI came back OK - that is not what they are concerned about. Rather, the calcifications in the milk duct and how my left boob started the same way. Here we go I say.

So, biopsy on Aug 15th in the morning. Hey, like last year with putting dye into my nipple was not fun enough - now they are going to put wires into the right boob (good boob I call it) for a "guided" biopsy. She does five of these a day I am told. Well....whoopie. OK. I am being mean and mad right out but as soon as I write this I'll be OK.

Everyone - cross your fingers, your toes, your eyes, your legs. As from the card that my sister sent me - I'll be munching on a stress sandwich for a few weeks!!!!

Peace be with me today.








Saturday, July 26, 2008

MRI Results

The MRI came back where it is the same as last year. So, I think that we are OK for a while. I see the surgeon on Monday, but my oncologist went over the results with me. I guess the information did not get to him, so thanks to the nurses, they shared my concern with him and he ordered the reports. I feel so much better and he really thought that getting the information to me before the weekend wait. Now - I like that thought.

OK - heading out to play with the little one.
Peace be with you.

Thursday, July 24, 2008

Exhausted

I can barely keep my eyes open, I think I was so stressed that when the MRI was over I just was so tired. Now, for some I am sure that the breast MRI is nothing. Thank heavens it was a nice day - I was able to look out the view finder to the outside. You look at this Yucca tree/bush. I made a cd of my favorites. Which I have to tell you, since I got that Iphone, and use the ipod I put some songs in my favorites, then when I play them and the next song comes up - I say - oh I love that song.....meaning - of course I do - I picked them silly.

I went to Sams club after my MRI to pick up a few things. I still had the "mask" look - go back to the last year MRI - so I think that people were looking at me a bit funny. Oh well I say!!!

As soon as I get the ice cream put away - 12 gallons I think for the party - I am going to bed.
Peace be with you.

Wednesday, July 23, 2008

Updates

Here is a HUGE card that my sister sent - you open it and it "flushes" all the stress away. Funny!

Can’t a girl catch a break. I am just numb and really can’t figure this out. I am pissed, scared, sad and mad. I can’t go through this again. How can I? I had my follow up mammogram last week and then was called back for more tests yesterday. They did the mammograms and ultrasound. Nothing on the ultrasound but there were calcifications on the mammograms. So, now, an MRI. The one that I was so scared to do last year at this time, here we go again. I am copying some songs for the hour that I am in the tube. I hate this. Now, my celebration nose ring poses an issue – I have to stop to get it out before the MRI. I guess he’ll put something in there to hold it open.

Oh, happy birthday to me. Had a good day, got calls from everyone and enjoyed some cake and presents. My sister topped it off. All I can say is that she has such a creative way and put into words things that I have said, thought and blogged. I cried. And read it again, and cried.

What flashes in my mind is I have a full load of classes to start in a month, I have other things to work on for “me” and of course I have to finish work – get the training done for those people. I can’t go through what I did a year ago. And, if something is up – then – I am for sure not doing ANY reconstructive surgery.

Another “oh” – I was at the Starbucks by work and got a call from my breast surgeon. I don’t think that is a good. She said to see her on Monday to review the results of the MRI. Crap…did I say CRAP! I am tired. Before I imagine this to be more of what this is - I need to just take my minute by minute day by day and then get the results on Monday. Long.....long weekend. Time to turn in.
Peace be with you